Your Voice Counts Autism and or learning disability Report, Hampshire

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Summary of report content

‘Your Voice Counts’ is a project commissioned by North East Hampshire and Farnham Clinical Commissioning Group (CCG). Healthwatch Hampshire produced this report at their request.

This phase 1 report was carried out between September and December 2016 and focussed on the opinions os people with Learning Disabilities and/or Autism. Over 100 people were spoken too during this project.

Healthwatch Hampshire carried out focus groups, conversations, and engagement events in five different towns throughout North East Hampshire and Farnham; Fleet, Yateley, Farnborough, Aldershot and Farnham. These events were attended by individuals, parents, carers, professionalsand volunteers from across the health and social care sector.

Our key findings included:The referral process- waiting for the referral to mental health services to be processed when at crisis point, there is a need to look at options around preventive services and how this would be more sustainable if they are put in place. Some even suggested that if this is done, they would not be at crisis point.

Resources- Alternative contact or hub of information rather than through their GP, taking the pressure off GPs as they are the first point of contact however GPs felt that they are not confident in signposting to an appropriate Learning Disability (LD) service or unknown to them

Resources- to be made available in easy read or alternative formats

Parents and carers are a big resource that is under-utilised by GPs and/or by other services

Parents and carers are not supported enough for their mental health and wellbeing

Lack of local services for mental health in their area- some are aware of the Wellbeing Centre in Aldershot and feel scared to travel to get the support they need when they are in crisis

Nearly half of the GPs that we spoke to felt that they were not confident to do a Mental Capacity assessment on their patients with a learning disability.

A number of recommendations were made based on the opinions gathered and the CCG stated they would take these into considerations when planning future services.

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General details

Local Healthwatch
Healthwatch Hampshire
Publication date
Date evidence capture began
Date evidence capture finished
Type of report
Report
Service Evaluation
Key themes
Access to services
Communication with patients; treatment explanation; verbal advice
Consent, choice, user involvement and being listened to
Diagnosis
Health inequality
Written information, guidance and publicity
Quality of treatment
Referrals
Service organisation, delivery, change and closure

Methodology and approach

Was the work undertaken in partnership with another organisation?
Yes
Primary research method used
Engagement event
Focus group

Details of health and care services included in the report

Details of health and care services included in the report
General Practice (GP)
Services for people with a learning disability
Mental health crisis service
Adult social care, including care packages and social workers
District nurse and community nursing
Urgent primary care, including Urgent Treatment Centres, walk-in care, out of hours GP services, minor injury and treatment centres
Name of service provider
North East Hampshire and Farnham Clinical Commissioning Group (CCG)

Details of people who shared their views

Number of people who shared their views
100
Age group
All
Gender
All
Types of disabilities
Learning disability or difficulties
Mental health condition
Types of long term conditions
Learning disability
Does this report feature carers?
Yes
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