What is the experience of mental health carers in Kent?

Healthwatch Kent has heard concerns from members of the public, voluntary organisations and health professionals from all over Kent about the experience of Carers for mental health patients and the support available to them.

Activmob conducted a detailed study, speaking with patients and professionals. In September, Healthwatch convened carers, commissioners, voluntary organisations, and providers to discuss findings and identify improvements. This report summarises carer feedback and discussions from that event.

Caring for someone with a serious mental illness has significant, often unrecognised impacts. Carers report feeling stigmatised, unsupported, and excluded by professionals, with little understanding of their experiences. There is confusion and inconsistency around confidentiality, and practical challenges—such as transport costs—add further strain.

Carers expressed frustration over lack of transparency (e.g. bed closures), tokenistic engagement, poor meeting accessibility, and insufficient involvement in discharge and care planning. They often feel they must “play the system” to get support, and face uncertainty during crises, with unclear points of contact and inconsistent services.

Access to support and information is patchy, with reliance on peer networks. While some groups provide valuable support, services are often limited, inconsistent, or not robust enough. Community and crisis support are frequently unavailable when needed.

Carers highlighted outdated service cultures, poor communication, high staff turnover, and lack of continuity. They called for more inclusive approaches, such as open dialogue, and better balance between service users’ and carers’ needs. Many also expressed concern about the future and what will happen when they can no longer provide care.