Wessex Cancer Alliance Patient, Carer and Public Experience and Engagement Literature Review
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The Wessex Cancer Alliance asked Wessex Voices (Healthwatch Dorset, Hampshire, Isle of Wight, Portsmouth and Southampton) to research and produce an independent literature review of recent local and national patient, carer and public experience and engagement to inform their response to the NHS Long Term Plan.
Whilst there was only a short space of time to gather and analyse information, Healthwatch feels that the review identifies and draws together in one place useful, common themes from this intelligence. (For more information about how we did this and our recommendations resulting from it see Appendix A).
The findings are documented under the headings of “Prevention and Screening”, “Earlier and Fast Diagnosis”, “Access to Optimal Treatment”, and “Personalised Care” (including End of Life), as set out in the Cancer Alliances Five Year Deliverables guidance.
The research identifies gaps in patient and public involvement (PPI) intelligence that may need further exploration. It draws out lessons learnt from the review exercise; makes recommendations to improve intelligence sharing around cancer related PPI; and makes some recommendations to the WCA about retaining a strong commitment to meaningful coproduction across all areas of its future work to enable it to be person-centred.