Understanding people’s experiences of bereavement support in Blackburn with Darwen

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Summary of report content

Healthwatch Blackburn with Darwen undertook research with residents to understand how they were coping with bereavement and what support they felt would be beneficial.  This followed on from their 2023 research on people's views of dying well.  They undertook a survey and focus groups, reaching 700 people.

The majority of residents who responded to the survey and who took part in the focus groups did not know where to access bereavement support and had not accessed it. People felt that there was little information about what services are currently available and there was little signposting by agencies of residents to this support. Overall, the feeling from residents was that the current provision in the borough was not sufficient to meet the needs of people experiencing grief at the loss of a loved one. 

People felt that any future support offer should be tailored to the individual but should include a mix of both in person and online and 1:1 support and group support. Most people felt that this support offer should be offered somewhere close to home and other suggested locations were the GP surgery/health centre and at people’s homes. The ‘at home’ offer was particularly suggested for Muslim women who cannot leave the house for several months following the death of their husband. Most respondents would want to access pre-bereavement support including financial planning and emotional support but have not been able to access this. 

Over half of the survey respondents and all of the focus groups felt that bereavement cafes would be beneficial for residents of Blackburn with Darwen and felt that these should be a mix of both professional and peer support. 103 residents left their contact details in their survey response with an interest in developing local bereavement cafes and several of the focus groups suggested the venues they access as appropriate locations for the cafes.

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General details

Local Healthwatch
Healthwatch Blackburn with Darwen
Publication date
Date evidence capture began
Date evidence capture finished
Key themes
Access to services
Consent, choice, user involvement and being listened to
Health inequality
Lifestyle and wellbeing; wider determinants of health
Public consultation and engagement
Waiting for appointments or treatment; waiting lists for treatment
Written information, guidance and publicity

Methodology and approach

Was the work undertaken in partnership with another organisation?
No
Primary research method used
Focus group
Mystery shopping
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced?
N/A

Details of health and care services included in the report

Details of health and care services included in the report
Counselling/Psychotherapy/ Improving Access to Psychological Therapies (IAPT)
Other

Details of people who shared their views

Number of people who shared their views
700
Age group
13 to 15 years
16 to 17 years
18 to 24 years
25 to 49 years
50 to 64 years
65 to 79 years
80+ years
Gender
Women
Men
Non-binary people
Is the gender identity of people in the report the same as the sex they were assigned at birth?
Not known
Ethnicity
Asian / Asian British: Chinese
Asian / Asian British: Indian
Asian / Asian British: Pakistani
White: British / English / Northern Irish / Scottish / Welsh
White: Any other White background
Sexual orientation
Not recorded
Marital and civil partnership status
Not recorded
Religion or belief
Christian
Muslim
No religion
Prefer not to say
Pregnancy/maternity
Not relevant
Types of disabilities
Learning disability or difficulties
Types of long term conditions
Not recorded
Does this report feature carers?
Yes
Seldom heard groups
People on low incomes
People with limited family or social networks
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