Stoma care in Suffolk
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Between July and September 2022, Healthwatch Suffolk asked people about their experiences of stoma care in Suffolk. They heard from 31 people.
Most had their stoma for over three years (68%)
80% received good or sufficient support from stoma teams and nurses
Most (71%) people knew how to contact the stoma nurse if they needed help
4.4 stars was the average rating for people’s experiences of requesting prescriptions
Having a stoma had impacted people’s lives in many ways, often significantly
The suggestions for improvement made by respondents were varied. They highlighted the need for connection with others who have shared lived experiences, and the need to be able to access ongoing accurate information on stoma care more easily. People also commented that they wanted improved communication between their GP practice, and the company providing their stoma equipment. Finally, surgeries and hospitals need to ensure that staff are knowledgeable about stoma care, and the impact it can have. Also that the individual needs of those with a stoma vary, so flexibility in care is important.