Multiple long-term conditions report
Download (PDF 679.02 KB)Summary of report content
Healthwatch Leeds undertook research on the experiences of working-age people living with multiple long-term health conditions. They spoke to 23 people through a survey and carried out in-depth interviews with a further 8 people as part of work to inform improvements to support for people with multiple long-term conditions, including mental health conditions.
People described significant challenges managing multiple conditions, including fatigue, low mood, transport difficulties and the need to attend multiple clinics and services across different locations. Problems accessing GP appointments were a recurring concern, with many reporting that standard appointments were too short to discuss all their health issues. Some said they delayed seeking help until their conditions became severe, leading to unplanned hospital admissions. Many also felt communication between healthcare professionals was poor and reported repeatedly having to explain their medical history and circumstances.
Most participants were unaware they had a care plan, but said they would welcome one and wanted to be involved in developing it. People wanted care plans to include diagnoses, medication, communication needs and personal goals. Transport was another significant issue, with many struggling to attend appointments because of costs, parking problems and the withdrawal of patient transport support. Most respondents had reduced their working hours or left employment because of their health conditions and were often unaware of support available to help them remain in or return to work.
Healthwatch Leeds recommended longer appointments with healthcare professionals, a more proactive approach to managing multiple conditions, greater involvement of patients in care planning, better communication between services, appointments closer to home, improved access to specialist teams, more support for employment and volunteering, and improved patient transport and parking arrangements. The report concluded that people want more coordinated, personalised care that recognises the impact of multiple health conditions on all aspects of daily life.