Listening to the experiences of people living with sight loss
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Healthwatch Dudley partnered with Beacon to understand the experiences of people with sight loss in accessing health and social care services and their views on Beacon. Data was gathered through two focus groups (21 participants).
Key Findings
1. GP Access
People reported mixed experiences: Some praised flexibility and helpfulness, others reported difficulty securing face-to-face appointments post-COVID. They also talked about long waits for appointments and a lack of choice of GP. People reported challenges booking longer appointments for complex needs.
2. Accessible Information
People reported a persistent failure to meet the Accessible Information Standard:
Patients often receive information via inaccessible portals. They reported a lack of large print, Braille, or alternative formats. People talked about a lack of privacy as they have to rely on carers to read private documents.
3. Social Care
People reported significant delays in assessments and equipment provision (e.g., stair lifts, Carers Assessments). They felt frustrated over inconsistent provision and lack of clear communication.
People reported some positive experiences with practical advice and tactile adaptations.
4. Care and Understanding
People reported that NHS staff lacking disability awareness and time, causing distress and unnecessary procedures. However, there was positive feedback for some hospitals, but overall need for more patience and empathy.
5. Experiences of Beacon
People's experience of Beacon was overwhelmingly positive. It was described as inclusive, supportive, and life-changing. It provided independence, social activities, and community.
However, people had a number of concerns, including:
- Costs for wellbeing services and additional support.
- Limited time for couples and restrictions on help with forms.
- Beacon clarified that some charges relate to housing provider, not Beacon.