Guiding Hands: enabling parent carers to get the help they need
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Parent carers play a crucial but often unrecognised role in supporting their children with additional needs. However, many do not realise they are parent carers or have the knowledge of what support is available to them.
Healthwatch Wiltshire research found that families need more practical support to navigate the complexities of the health, education and benefit system. They also require more emotional support to maintain their resilience and manage the emotional strain.
Parent carers want a partnership approach with professionals, but these relationships are often poor. Parent carers feel supported by two key organisations, with Carers Together Wiltshire running the cafés/groups and the Wiltshire Parent Carer Council providing support.
Recommendations include:
- Launching an awareness campaign
- Strengthening the parent carer groups
- Establishing a parent carer companion role
- Improving access to core advice
Parent carers play a critical role supporting their cared for family members. However, they need Guiding Hands to give them access to essential information and navigate the complexities of the wider care and support system.