Dementia survey report

Healthwatch Bury ran a research project into the experience of individuals living with dementia. This was done through a questionnaire, which was completed by 46 service users. The data gathered was both qualitative and quantitative data for a more comprehensive overview of their experience.

Diagnosis of dementia in Bury is generally undertaken by GP Practices with a limited number of more complex cases referred to the Memory Clinic Experience of diagnosis was generally good although it could take years from initial raising of concerns to a confirmed diagnosis.

Referrals to support services provided by Alzheimer’s Society were ad hoc and there were no consistent actions taken around advice and support at the point of diagnosis. Results of memory tests and scans were often given by phone over the last two years causing greater upset and distress to patients and their families.

There was little follow up contact by GP practices after diagnosis with patients with families feeling they had been abandoned.  There was also little evidence of post diagnostic treatment such as cognitive stimulation therapy available in Bury.

The report has eight recommendations about access to diagnostic services, training for professionals; access to information and guidance for those people with a diagnosis and their families, including about sources of support and guidance, improving communication with family members, providing information about treatment and ensuing appropriate diagnostic and support services are in place.