Delving into Dementia

Healthwatch Thurrock wanted to find out people's experience of dementia support to inform the review of the South Essex and Thurrock Dementia Strategy.  They heard from 151 people.

One of the most pressing concerns raised was the difficulty in securing a dementia diagnosis locally. Many families reported long waiting times and inconsistent information, making it harder to access early intervention and plan for the future. Some individuals felt unsupported following their diagnosis, with a lack of clear pathways to local services, leaving them uncertain about where to turn for help. The complexity of navigating health and social care systems in Thurrock was another key frustration, with some feeling that available support was fragmented or poorly communicated. 

Carers play a vital role in supporting loved ones with dementia, yet many reported feeling isolated and undervalued. The emotional and physical toll of caring for someone with dementia can be overwhelming, and in Thurrock, access to respite care and tailored carer support remains limited. Many carers expressed the need for better recognition of their role, with more opportunities for training, peer support, and access to mental health services to help them cope with the demands of caregiving. 

Despite these challenges, there is a strong community-driven desire to improve dementia care in Thurrock. Residents emphasised the need for more dementia-friendly initiatives, including accessible social groups, local memory cafés, and public spaces designed with inclusivity in mind. Training for frontline staff—such as those in GP practices, transport services, and retail environments—was highlighted as a key improvement to ensure that individuals with dementia are treated with understanding and respect. Additionally, families stressed the importance of raising awareness to combat stigma, enabling those with dementia to live with dignity and continue participating in their communities for as long as possible. 

In conclusion, there is a call for Thurrock to continue to develop a more person-centred approach to dementia care—one that empowers individuals and their families rather than leaving them to struggle through a system that often feels disconnected. As one participant powerfully stated, “Rather than writing people off, we need to enable and encourage them to keep as much control over their lives and choices as possible.” This sentiment reflects a broader call for change: ensuring that dementia care in Thurrock is not only accessible and well-coordinated but also compassionate, proactive, and centred on the needs of those living with the condition.