Breaking Barriers: Improving access and awareness in cervical screening in Blackburn with Darwen

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Summary of report content

Healthwatch Blackburn with Darwen undertook research on barriers and attitudes to cervical screening to understand awareness, accessibility, cultural influences, and potential strategies to improve participation.  They undertook a survey of women, interviews with healthcare professionals, enter and view visits to GP surgeries and a case study.  They spoke to 60 people.

Many participants expressed fear about receiving bad news or finding something wrong, leading to hesitation or avoidance of screening. There was confusion about the screening process, with some imagining it as invasive or painful due to lack of clear information. Myths about virginity and the perceived invasiveness of the test were barriers for some participants.

Participants highlighted a lack of accessible and relatable information about cervical cancer and the screening process in their communities. Several participants suggested using simple, visual aids, such as posters or videos, to explain the process and its importance. Many advocated for using platforms like TikTok and Instagram to share information, particularly targeting younger audiences. Programmes should not be one-off but ongoing, incorporating regular messaging and accessible sessions.

Discussing health issues, especially related to reproductive health, was considered taboo in some families. Participants often relied on close friends or small family circles for discussions, avoiding larger family conversations due to embarrassment. Many participants suggested community-based awareness programmes and events to foster open discussions.

Difficulty in booking appointments or distrust in healthcare providers affected participation rates. Positive experiences with compassionate nurses were highlighted as a factor that could improve uptake, while negative experiences deterred participants. There was a preference for having screening at local GP practices due to convenience.

A specific example of a poster featuring a child whose mother had died from cervical cancer was mentioned as a powerful motivator. Participants suggested that local influencers or relatable figures could help normalise the discussion around cervical screening.

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General details

Local Healthwatch
Healthwatch Blackburn with Darwen
Publication date
Date evidence capture began
Date evidence capture finished
Key themes
Access to services
Accessibility and reasonable adjustments
Administration (records, letters, results)
Booking appointments
Caring, kindness, respect and dignity
Communication with patients; treatment explanation; verbal advice
Consent, choice, user involvement and being listened to
Lifestyle and wellbeing; wider determinants of health
Written information, guidance and publicity

Methodology and approach

Was the work undertaken in partnership with another organisation?
No
Primary research method used
Focus group
Interviews
Observation (eg Enter and View)
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced?
Announced

Details of health and care services included in the report

Details of health and care services included in the report
General Practice (GP)
Screening services and testing

Details of people who shared their views

Number of people who shared their views
81
Age group
18 to 24 years
25 to 49 years
50 to 64 years
Gender
Women
Non-binary people
Is the gender identity of people in the report the same as the sex they were assigned at birth?
Yes
Ethnicity
Asian / Asian British: Indian
Asian / Asian British: Pakistani
White: British / English / Northern Irish / Scottish / Welsh
White: Gypsy, Traveller or Irish Traveller
Sexual orientation
Not recorded
Marital and civil partnership status
Not recorded
Religion or belief
Not recorded
Pregnancy/maternity
Not recorded
Types of disabilities
Not recorded
Types of long term conditions
Not recorded
Does this report feature carers?
No
Seldom heard groups
People on low incomes
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