Autistic spectrum condition (ASC) report

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Summary of report content

Following feedback from autistic people and their families/carers, Healthwatch Greenwich conducted a study into autistic spectrum condition (ASC) specialist services for children and young people. Following the initial report, Healthwatch Greenwich expanded the scope of this research to include specialist services for autistic adults as well as children. They spoke to 65 people.

Through an online survey, focus groups and one on one interviews, Healthwatch identified six major themes about ASC services.  People experienced long waiting times for assessment and diagnosis.  There were varying experiences of service quality across the borough.  There was a lack of communication and information sharing among different health, social care and educational services and the professionals in these services didn’t accept and understand ASC experiences.  People found it difficult to locate and access support services without an official diagnosis. Young people experienced difficulties in transitioning to adult services.

The report includes 6 recommendations about access to support services, information, awareness training, information sharing and the need for oversight of school special educational needs coordinators (SENCOs).

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General details

Local Healthwatch
Healthwatch Greenwich
Publication date
Type of report
Report
Key themes
Communication with patients; treatment explanation; verbal advice
Diagnosis
Staffing - levels and training
Caring, kindness, respect and dignity
Waiting for appointments or treatment; waiting lists for treatment

Methodology and approach

Was the work undertaken in partnership with another organisation?
No
Primary research method used
Engagement event
Focus group
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced?
N/A

Details of health and care services included in the report

Details of health and care services included in the report
Community Mental Health Team (CMHT) and specialist MH services

Details of people who shared their views

Number of people who shared their views
65
Age group
Not known
Gender
Not known
Is the gender identity of people in the report the same as the sex they were assigned at birth?
Not known
Sexual orientation
Not known
Types of long term conditions
Learning disability
Does this report feature carers?
Yes
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