Adults with autism: people's experiences of the autism assessment process in Gloucestershire
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Healthwatch Gloucestershire had been hearing from adults who have asked to be referred for an autism assessment. Through the feedback they have received, they are aware that waiting times for assessment have increased recently. They collected people’s feedback in a variety of ways and assessed the information and support available for people about support for people with autism. They spoke to 15 people.
There is no ‘one place’ in Gloucestershire for people to find accurate and up-to-date information about autism and the health and care support that’s available.
Most people do not know whether they are on the waiting list for an autism assessment or how long the wait will be. Once on the waiting list, people rarely hear anything from the service.
When people are invited for an assessment, they are unsure of the process, how long it will take and who will be involved.
There is a lack of awareness and training on women with autism, including around masking behaviours that women may adopt to hide/manage their autistic traits.
Most people are not aware of any advocacy help available in Gloucestershire which might be available to support them in the workplace and with medical appointments. People who are advised that they are not autistic after assessment are left with no help and support.
The report concludes with recommendations on information and communication, support, experts by experience and raising awareness.