Listening to the experiences of people living with HIV

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Summary of report content

Healthwatch Dudley engaged with people with HIV by joining a monthly session run by Beehive, a sexual health and LGBTQ+ support service based at The What? Centre.  They spoke to 4 people.

Participants said that they feel GPs often lack sufficient knowledge of HIV and how it impacts their health. 

People felt personal questions asked as part of triage processes were “invasive” and could cause distress when booking GP appointments.

People told how issues with communicating test results and prescriptions led to confusion, delays and complications with treatment.

Experiences of specialist HIV outpatient appointments were overwhelmingly positive, with participants saying they received respectful and dignified treatment.

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General details

Local Healthwatch
Healthwatch Dudley
Publication date
Key themes
Access to services
Booking appointments
Caring, kindness, respect and dignity
Communication with patients; treatment explanation; verbal advice
Consent, choice, user involvement and being listened to
Health inequality
Privacy and confidentiality
Remote appointments and digital services
Service organisation, delivery, change and closure
Staffing - levels and training

Methodology and approach

Was the work undertaken in partnership with another organisation?
No
Primary research method used
Engagement event
If an Enter and View methodology was applied, was the visit announced or unannounced?
N/A

Details of health and care services included in the report

Details of health and care services included in the report
Dentist
General Practice (GP)
Sexual health

Details of people who shared their views

Number of people who shared their views
4
Types of long term conditions
Other
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