Beyond the pain: an overview of endometriosis and adenomyosis care
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Healthwatch East Riding of Yorkshire received enquiries and information about the support and services available for people with Endometriosis and Adenomyosis in the East Riding region. With both positive and negative experiences impacting on the health and wellbeing of patients, a further look into healthcare surrounding these conditions was carried out. They undertook public engagement, reaching 259 women.
There is limited accessibility to Endometriosis and Adenomyosis specialised services for diagnosed patients and those who are yet to receive a diagnosis.
There is a lack of support and information provided to patients following diagnosis of both Endometriosis and Adenomyosis.
Mental health support is extremely limited and rarely offered to patients living with Endometriosis or Adenomyosis.
There is a limited availability of appointments with specialist care services (services only being available one day a week, between limited hours from Castle Hill).
Awareness and understanding of these conditions are limited from general population (families, workplace) to medical professionals (GPs, A&E staff) perspective.
Stigma around menstrual health and chronic pain conditions exists in the East Riding region and on a national scale.
Repeated bad experiences has resulted in women having a lack of trust in the services, with many feeling that their condition and symptoms do not matter.