Engaging communities: Insights from the Healthwatch led community workshops across the East of England

NHS East of England Secure Data Environment commissioned Healthwatch to undertake six local events to:

• Gain an understanding of what people from each region understand and believe about current and potential uses of NHS data.
• Uncover the specific concerns and apprehensions individuals have regarding the use of their NHS data, particularly around privacy, security, and misuse.
• Understand people’s expectations, hopes, and priorities for research involving their NHS data, focusing on areas where data could drive meaningful healthcare improvements.
• Identify what rules, protections, and safeguards would enhance public trust and make individuals feel more comfortable with their data being used for research purposes.
• Determine the most effective channels and formats for delivering information about the project, including opt-out options, ensuring accessibility and visibility for diverse audiences

The six workshops demonstrated clear, but cautious interest in using data to enhance healthcare, but concerns around privacy, security, and inclusion need to be addressed. A strategy that emphasises transparency, education, and meaningful integration of the use of healthcare data into the NHS system will foster trust and greater engagement with data-driven healthcare improvements such as the SDE.