Feedback given to Healthwatch Gloucestershire about people's experiences of being diagnosed and living with Parkinson's
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Healthwatch Gloucestershire undertook an analysis of its feedback from patients with Parkinson's Disease and their carers. They identified a number of key themes in the data they received:
There is a lack of information being provided to people at the point of being diagnosed, as well as at follow-up appointments.
People have concerns about access and the frequency of appointments, particularly with the Neurologist.
People feel that there is a lack of coordinated and holistic care which affects their overall experience and outcomes.
Many people spoke about the benefit of the VCSE sector in establishing social support through local groups and having someone they could approach informally with any concerns for advice and guidance. However, not everyone is made aware of these.