Walsall Together: End of Life & Palliative Care Pathway Family Member / Loved Ones Engagement Report

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Summary of report content

Healthwatch Walsall engaged 41 family members and loved ones to capture qualitative data on care pathways.

Communication between staff and family members was highlighted as the main area for improvement. There were some comments that discussions with family members could be improved around condition management, next stages of care, and discharge arrangements. Some family members informed us that their loved one wanted to die at home or in palliative care but by the time arrangements were to be made the patients’ health had deteriorated making discharge difficult.

Whilst a sizeable proportion of family members and loved ones had been offered bereavement support through the palliative care team and hospital there were inconsistencies that meant some people were not offered support or that they required bereavement support at a later date but did not know where to turn to.

Accessing continuing healthcare packages have in some cases been a challenge for patients and family members as noted in this report. Getting the appropriate and timely care package where possible is essential.

A number of recommendations were made in the report.

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General details

Local Healthwatch
Healthwatch Walsall
Publication date
Date evidence capture began
Date evidence capture finished
Key themes
Building, Decor and Facilities, including health and safety
Communication with patients; treatment explanation; verbal advice
Consent, choice, user involvement and being listened to
Lifestyle and wellbeing; wider determinants of health
Written information, guidance and publicity
Caring, kindness, respect and dignity

Methodology and approach

Primary research method used
Engagement event

Details of health and care services included in the report

Details of health and care services included in the report
Palliative/end of life care

Details of people who shared their views

Number of people who shared their views
41
Does this report feature carers?
Yes
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