Post-Covid syndrome: People's experiences of health care and support in Gloucestershire

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Summary of report content

Healthwatch Gloucestershire wanted to understand how post-COVID syndrome (long COVID) is affecting people’s health and wellbeing and to find out what care and support is available in Gloucestershire.

A survey ran in December 2021 and was completed by 50 people. Six people discussed their experiences over the phone.

Key messages

  • People don’t always know which services are available to help them.
  • Most people were helped by their GPs and a smaller proportion were helped in hospitals.
  • People are waiting a very long time to hear from the Post-COVID Syndrome Assessment Service after referral.
  • Patients felt left alone to seek their own treatment options.
  • Being proactive to find support could be challenging due to brain fog and fatigue.
  • People were not often given the opportunity to have face-to-face conversations with clinicians.
  • Long waiting times and disjointed services made mental and physical wellbeing more difficult to treat

A number of recommendations were made in the report.

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General details

Local Healthwatch
Healthwatch Gloucestershire
Publication date
Date evidence capture began
Date evidence capture finished
Key themes
Access to services
Booking appointments
Communication with patients; treatment explanation; verbal advice
Remote appointments and digital services
Lifestyle and wellbeing; wider determinants of health
Written information, guidance and publicity
Integration of services and communication between professionals
Referrals
Caring, kindness, respect and dignity
Waiting for appointments or treatment; waiting lists for treatment

Methodology and approach

Was the work undertaken in partnership with another organisation?
No
Primary research method used
Survey
General feedback

Details of health and care services included in the report

Details of health and care services included in the report
General Practice (GP)
Urgent primary care, including Urgent Treatment Centres, walk-in care, out of hours GP services, minor injury and treatment centres

Details of people who shared their views

Number of people who shared their views
56
Types of long term conditions
Other
Does this report feature carers?
Yes
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