What people with autism spectrum conditions and their carers think of services
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Healthwatch Wiltshire undertook research to gather the views of people with autism spectrum conditions and their carers about health, care, and support services in Wiltshire. In total they spoke to 102 people.
An appointment with a doctor or nurse can cause considerable anxiety and stress for someone with an autism spectrum condition. Difficulties were reported in explaining things to health professionals and in understanding what they were told about their treatment and follow-up.
Hospital environments were particularly difficult for those with an autism spectrum condition. Experience of phone call and video appointments were mixed and depended on the individual concerned. However, responses suggested that these had benefits for some people.
Most of those with autism spectrum conditions and their carers did not feel that they got enough support related to their condition. We were told that most people were supported by unpaid carers. This included parents, partners, other family members and neighbours.
Other support services were valued but there was not enough information about them or their availability. There was mixed feedback about respondents’ experiences of diagnosis.