How do autistic people and people with learning disabilities experience healthcare in Rotherham

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Summary of report content

Healthwatch Rotherham wanted to give autistic people and people with learning difficulties the chance to tell services what is working and what isn't; and how well healthcare services care for them and talk, listen to and understand them and provide reasonable adjustments for them.  They undertook a survey and spoke to parents and carers.  They spoke to 65 people.

Key findings

  • Over half of people who completed a survey weren't given any reasonable adjustments.
  • Most people didn't have or didn't know about health passports
  • Hospital and GP waiting rooms needed to cater better for autistic people and people with learning difficulties
  • People told us they had problems with healthcare staff explaining things clearly
  • A number of people told us they felt they weren’t listened to enough. People felt their problems were not looked at properly.
  • Not everyone is having their annual health check
  • Over four in five felt safe in healthcare settings
  • Over half felt they were getting good care
  • Some services provide extra support for autistic people and people with learning disabilities.

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General details

Local Healthwatch
Healthwatch Rotherham
Publication date
Key themes
Access to services
Accessibility and reasonable adjustments
Building, Decor and Facilities, including health and safety
Caring, kindness, respect and dignity
Communication with patients; treatment explanation; verbal advice
Consent, choice, user involvement and being listened to
Service organisation, delivery, change and closure
Waiting times- punctuality and queuing on arrival
Written information, guidance and publicity

Methodology and approach

Was the work undertaken in partnership with another organisation?
No
Primary research method used
Engagement event
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced?
N/A

Details of health and care services included in the report

Details of health and care services included in the report
General Practice (GP)
Hospital services- not stated
Services for people with a learning disability
Services for people with Autism/on the Autism spectrum

Details of people who shared their views

Number of people who shared their views
65
Types of disabilities
Learning disability or difficulties
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