Bereaved Carers Survey about End-of-Life Care in Leeds
Download (PDF 1.4 MB)Summary of report content
Healthwatch Leeds undertook a research project with Leeds Palliative Care Network to understand people’s experiences of end-of-care for their relative or friend. Between October to December 2021, 115 people responded to their survey.
The survey showed that for people who died in hospital, there were high levels of satisfaction with the care provided and 60% of respondents believed their friend/relative dies in the right place. However, only 51% believed that themselves or their relative/friend was as involved in the care as they would have liked. Of 41 respondents, 23 said the kindness and respect from staff was good.
In contrast, for people who died at home, more respondents (93%) felt as though their friend/relative dies in the right place and 82% felts as thought they were as involved in the care as they would have liked.
For those who died in hospice, the findings were overall very positive, with very few comments about how the care could be improved.
The survey concludes with recommendations to improve care. This includes keeping families up to date about changes to care plans and improve overall communication, as well as improve the provision of information about support during and after this process. This report was shared with Leeds Palliative Care Network.