Special Educational Needs and disabilities: service experiences of children, young people and their families In Gateshead

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Summary of report content

Healthwatch Gateshead worked in partnership with the Northeast and North Cumbria ICB to engage with children and young people with special educational needs and disabilities and their families to understand their experiences across education, health and social services.  This is intended to feed into the joint commissioning strategy.  They heard from 45 people.

Among the 45 respondents, there were high levels of dissatisfaction in how services met the needs of their child and the wider family. However, there were also several examples of good practice reported and positive experiences shared.

Overall, only 38% of caregivers responded positively when asked if services met their child’s needs and an equal number felt that the services met the needs of their family. Much of the frustration felt by families appeared to stem from difficulties accessing services and lengthy waiting times.

While overall caregivers felt that the support received by services was not duplicated, there were issues with the lack of joined-up provision and what caregivers perceived to be a lack of communication between service providers. Experiences in Mainstream Schools / Colleges were less positive that those in Specialist Schools / Colleges and ratings were consistently lower across indicators including meeting needs, the effective use of reasonable adjustments, and transitions between key stages and schools.

Healthcare service experiences were largely positive. Reasonable adjustments were good in most cases, but due to the level of demand, waiting times were long and the frequency of support did not meet the needs of many.

A small proportion of those consulted reported using social care services. Where services were used, feedback was largely positive. However, subsidised provision for specific groups (i.e., those over 18) and specific types of support (i.e., training, employment, and respite opportunities) could be further developed.

The report contains six recommendations about sharing good practice, staff training, awareness of services and communication.

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General details

Local Healthwatch
Healthwatch Gateshead
Publication date
Date evidence capture began
Date evidence capture finished
Key themes
Access to services
Communication with patients; treatment explanation; verbal advice
Consent, choice, user involvement and being listened to
Integration of services and communication between professionals
Written information, guidance and publicity

Methodology and approach

Was the work undertaken in partnership with another organisation?
Yes
Name(s) of the partner organisation(s)
Northeast and North Cumbria ICB
Primary research method used
Survey
If an Enter and View methodology was applied, was the visit announced or unannounced?
N/A

Details of health and care services included in the report

Details of health and care services included in the report
Child and Adolescent Mental Health Services (CAMHS) and Targeted Mental Health in Schools Services (TaMHS)
Children's social care services
Services for people with Autism/on the Autism spectrum

Details of people who shared their views

Number of people who shared their views
45
Age group
13 to 15 years
16 to 17 years
18 to 24 years
Types of disabilities
Learning disability or difficulties
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