People’s Experiences of long COVID in Sussex: Qualitative engagement

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Summary of report content

As part of a programme of activity to explore the ‘restoration and recovery’ of health and care services after the COVID-19 pandemic, the three Sussex Healthwatch (Brighton & Hove, East Sussex and West Sussex) sought to better understand the longer-term impacts of COVID-19 infections, including people’s experiences of support in managing ongoing symptoms and the wider impacts on their day-to-day lives.  They undertook qualitative engagement to explore the themes raised in an earlier survey.  They spoke to 46 people.

Key themes explored included how long Covid impacted people's quality of life, physical and mental wellbeing, employment and job security, home life, experiences of health care, information and support for long Covid and experiences of the Post-Covid Assessment and Support Service.

The report contains four recommendations about greater awareness of long Covid; training for health professionals, dedicated clinics and the existing service capturing feedback from patients and acting on it.

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General details

Local Healthwatch
Healthwatch Brighton And Hove
Healthwatch East Sussex
Healthwatch West Sussex
Publication date
Date evidence capture began
Date evidence capture finished
Key themes
Caring, kindness, respect and dignity
Communication with patients; treatment explanation; verbal advice
Diagnosis
Lifestyle and wellbeing; wider determinants of health
Medication, prescriptions and dispensing
Service organisation, delivery, change and closure
Staffing - levels and training
Waiting for appointments or treatment; waiting lists for treatment

Methodology and approach

Was the work undertaken in partnership with another organisation?
No
Primary research method used
Interviews
If an Enter and View methodology was applied, was the visit announced or unannounced?
N/A

Details of health and care services included in the report

Details of health and care services included in the report
General Practice (GP)
Long Covid clinics or treatment

Details of people who shared their views

Number of people who shared their views
46
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