Women and multiple long term health conditions

Healthwatch Essex explored women's experience of multiple long-term conditions.  They spoke to 19 women.

The report identifies five key themes. First, women face a heavy burden when navigating healthcare systems, including managing appointments, referrals, and test results across multiple specialties. This process is often fragmented, inefficient, and exhausting, particularly when communication between services is poor and when patients are discharged without notice or must repeatedly seek referrals. 

Second, the quality of relationships with healthcare professionals strongly influences women’s experiences. Many participants reported not being listened to, believed, or taken seriously, which undermined trust and sometimes delayed diagnosis or treatment. Positive experiences occurred when professionals communicated clearly, respected patients’ knowledge, and worked collaboratively with them.

Third, women prioritised maintaining their daily functioning and quality of life rather than focusing solely on clinical indicators. They often developed their own strategies to manage fatigue and symptoms, but these approaches were not always recognised or supported by healthcare systems. Caring responsibilities, especially for children or family members, further shaped how they managed their conditions and interacted with services. 

Fourth, many participants experienced ableism and structural barriers in both healthcare and wider society. Services and environments were often not accessible, and women described difficulties accessing benefits, facing public stigma, and dealing with the financial costs of living with chronic conditions. These challenges required constant self-advocacy, which was physically and emotionally draining. 

Fifth, neurodivergent women (e.g. those with autism or ADHD) faced additional challenges in managing multiple long term health conditions. Healthcare systems were often not designed to meet their needs, with inadequate adjustments, poor understanding from professionals, and difficulties accessing appropriate support. Tailored communication, sensory considerations, and better training for staff were identified as key improvements. 

Overall, the report concludes that current health systems, which are organised around single conditions, do not meet the needs of women living with multiple conditions. It calls for more holistic, joined-up, and person-centred care that values women’s expertise in their own conditions, improves accessibility, supports prevention, and strengthens relationships between patients and professionals.